On Tuesday, Pennsylvania State University professor Michael Bérubé
published an op-ed in USA Today,
titled “Don’t Let My Son Plunge Off the ‘Disability Cliff’ When I’m Gone.”
In it, Bérubé, the father of a young man with an intellectual disability, describes the devastating loss of services youths with disabilities face when they leave their K-12 years. He describes his family’s efforts to find an adult life that works for his son Jamie. Bérubé also describes his family’s concerns about Jamie’s future once heand his wife are gone. The family has planned a life for Jamie that includes some days in a sheltered workshop at subminimum wage
, plusmore integrated activities on others. Clearly, they have invested a great deal of effort into finding ways to give him a life he enjoys and intend to continue doing so. Someday, however, Jamie will leave home, and when he does, his … Continue Reading ››
Each Friday at NOSmag, I post some links relevant to neurodiversity news and culture criticism around the web. This is what I’ve been reading and that I think you should be reading too. Feel free to add links of your own in the comments and email suggestions for future link roundups to firstname.lastname@example.org or Tweet us @NOSeditorial
In Joel and Ethan Coen’s “Barton Fink,” there’s a scene where the title character (John Turturro), a pretentious playwright who’s moved to Hollywood, meets his new neighbor Charlie (John Goodman), an insurance salesman. Fink shares his ambition to tell stories about “the common man,” with Charlie piping up that he could “tell you some stories” several times. Fink doesn’t take the hint, simply steamrolling ahead instead of listening to the guy whose voice he’s supposedly out to capture.
It can be a frustratingly similar experience for a member of a marginalized group trying to get a word in edgewise with someone claiming to advocate for you, especially if they’re being less helpful than they imagine they are. It can be mortifying to be told you’re hindering rather than helping, but someone who sincerely cares about their advocacy will make time to listen to those affected by it.
And then there’s William Shatner, … Continue Reading ››