On Tuesday, a fiery exchange took place between autistic advocates and autism parents the quarterly Interagency Autism Coordinating Committee meeting about inclusion, civil rights, and the usefulness (or lack thereof) of functioning labels. IACC is a government advisory panel responsible for setting federal research priorities
. Only three of the 31 IACC members are autistic themselves. None of the federal members are autistic, nor is the committee chair.
In a written comment, Jill Escher, a long-time foe
of the validity of autistic advocacy
and civil rights
, submitted a blog post
she wrote about neurodiversity on the official San Francisco Autism Society
website. She complained that neurodiversity has ruined the validity of autism as a diagnosis because it includes "high functioning" people like the autistic representatives on IACC and "low functioning" people like her own children. This sparked a tense conversation among members of IACC that revealed … Continue Reading ››
Each Friday at NOSmag, I post some links relevant to neurodiversity news and culture criticism around the web. This is what I’ve been reading and that I think you should be reading too. Feel free to add links of your own in the comments and email suggestions for future link roundups to email@example.com or Tweet us @NOSeditorial
In Joel and Ethan Coen’s “Barton Fink,” there’s a scene where the title character (John Turturro), a pretentious playwright who’s moved to Hollywood, meets his new neighbor Charlie (John Goodman), an insurance salesman. Fink shares his ambition to tell stories about “the common man,” with Charlie piping up that he could “tell you some stories” several times. Fink doesn’t take the hint, simply steamrolling ahead instead of listening to the guy whose voice he’s supposedly out to capture.
It can be a frustratingly similar experience for a member of a marginalized group trying to get a word in edgewise with someone claiming to advocate for you, especially if they’re being less helpful than they imagine they are. It can be mortifying to be told you’re hindering rather than helping, but someone who sincerely cares about their advocacy will make time to listen to those affected by it.
And then there’s William Shatner, … Continue Reading ››