Tag Archives: no modern asylums

Developmental Disability Community Faces a Housing Crisis

On Tuesday, Pennsylvania State University professor Michael Bérubé published an op-ed in USA Today, titled “Don’t Let My Son Plunge Off the ‘Disability Cliff’ When I’m Gone.” In it, Bérubé, the father of a young man with an intellectual disability, describes the devastating loss of services youths with disabilities face when they leave their K-12 years. He describes his family’s efforts to find an adult life that works for his son Jamie. Bérubé also describes his family’s concerns about Jamie’s future once heand his wife are gone. The family has planned a life for Jamie that includes some days in a sheltered workshop at subminimum wage, plusmore integrated activities on others. Clearly, they have invested a great deal of effort into finding ways to give him a life he enjoys and intend to continue doing so. Someday, however, Jamie will leave home, and when he does, his … Continue Reading ››

Ford Foundation Breaks Commitment to Disability Rights, Funds Institution

Sometime in the next few years, a new institution will open in Delaware. Despite the New York Times and Boston Globe's pearl-clutching angst about the supposed devastating social impact of deinstitutionalization and lack of desire to consider newer, better, cleaner asylums. This institution, like many similar ones cropping up mostly unnoticed outside disabled activism in the past several years, claims to be an “intentional community of choice” offering people with disabilities more options for housing with supports in place that they might need. That rhetoric is extremely misleading at best, and outright dangerous at worst. It completely twists the meaning of the word “choice” beyond all recognition, to an extent that should make any English teacher cringe in shame. Over the past several years, I've been working on policy advocacy around a set of federal regulations known as the Medicaid Home and Community-Based Services Rule. This is better known as … Continue Reading ››