Martin Shkreli Doesn’t Matter, Daraprim Still $750 per Pill

Yesterday, a federal judge revoked the $5 million bail of Martin Shkreli, the infamous pharma bro. This means he is definitely going to jail while he awaits sentencing for securities fraud. The Internet, unsurprisingly, is engulfed in a paroxysm of schadenfreude. Shkreli is an easy man to hate. Whether he's offering thousands of dollars to anyone who pulls Hillary Clinton's hair out or "disrespecting the Wu-Tang Clan," Martin Shkreli is easily the most hated man in America. And you know what? I couldn't possibly care less. Daraprim still costs $750 per pill. Nothing has changed for me or anyone else who needs Daraprim. Nothing that happens to Martin Shkreli will change that. Daraprim, often inaccurately referred to as an "AIDS drug" in media coverage, treats acute toxoplasmosis infection. Toxoplasmosis can cause brain, eye, and lung  damage in fetuses and people with weakened immune … Continue Reading ››

Murphy Bill Author Embroiled in Sex Scandal

Last Wednesday, Representative Tim Murphy (R-PA) had an  affair with Shannon Edwards, a married woman half his age. Murphy was forced to reveal the affair when the Pittsburgh Post Gazette succeeded in a court motion to unseal divorce documents. They also discovered that it is possible that Rep. Murphy abused the resources of his office over the course of his affair. This is significant to the disability community because Rep. Murphy may have been abusing the resources of his office during the time he was pushing for the Murphy bill to pass. Rep. Murphy has long been one of Congress's most vocal champions of forced psychiatric medication.  In 2016, Rep. Murphy championed the "Helping Families in Mental Health Crisis Act," better known as the Murphy bill, which would, in its original form, have increased funding for forced medication and institutionalization of people with psychiatric disabilities. His bill would … Continue Reading ››

Anti-ADA Legislation Advances in House

The House judiciary committee has voted to move forward with a bill that could roll back some Americans with Disabilities Act (ADA) protections. 15 members of the committee voted to advance the bill, nine voted against it. Now that it has gone through markup, the bill will go to the floor of the House of Representatives, where it will go to a vote. The time and date of the vote have not yet been scheduled. The ADA Education and Reform Act (HR 620) was put forward by Representative Ted Poe (R-Tex.). It has been cosponsored by 40 House Republicans and 11 Democrats. This legislation would amend the ADA to add a 120 day waiting period between when a business is notified of an ADA violation and when the person reporting can take the case to court. During that 120 days, businesses would be expected to fix or “make substantial progress” towards … Continue Reading ››

Autistic Activists Call for Kiehl’s Boycott

On September 1, Kiehl’s, a popular cosmetic company, launched a campaign with  to raise money for Autism Speaks. In a video some might describe as cringe-inducing, McConaughey implores viewers to share his video because, “children with autism need our support and they need it right now… They need access to services to give them a real chance at a better life.” For each share of the video, Kiehl’s has committed to contributing $1, up to $200,000. Additionally, Kiehl’s is selling “Ultra Facial Cream Limited Edition 2017,” which the Kiehl’s website describes as, “a daily face moisturizer to promote autism awareness.” The site does not elaborate how exactly a face moisturizer would promote awareness of anything. Ironically, money donated to Autism Speaks is unlikely to give autistic people a “real chance at a better life,” nor would it give anyone autistic access to services. As of 2017, only 3%Continue Reading ››

Mental Age Theory Hurts People with Intellectual Disabilities

Have you ever heard the phrase "that person has the mind of a five year old In an adult body?" It is something many adults with intellectual disabilities, like me, have to deal with. For years, medical professionals have told parents of newly diagnosed Intellectually disabled people that they would mentally be children for their entire lives. Even through I am a 28-year-old, pregnant, married adult, as well as a faculty member at University of Washington, people still tell me that I think like a child. These words are not just offensive language. They can also take away our rights to normal adult lives.  Historically, so-called “mental age theory” has stripped people with intellectual and developmental disabilities of our dignity, our reproductive freedom and our parental rights. Age theory has also been used to strip us of the rights to make adult choices, such as buying alcohol and tobacco or having sexual … Continue Reading ››