Tag Archives: Autism Speaks

There are Bigger Threats to Autistics Than Autism Speaks

Autism Speaks is anti-autistic. Autism Speaks spends too much money on cause and cure research rather than things that are actually helpful.  Autism Speaks would like to ensure that future generations of autistic people are never born. All of those things are true. But you know what else is true? Autism Speaks is not the only threat to autistic people’s well-being and autonomy right now. In fact, in the era of Donald Trump’s presidency, it is hard to make the case that Autism Speaks is even close to the biggest threat. This is not a defense of Autism Speaks. Like most autistic people involved in the neurodiversity community, I am disgusted with Autism Speaks’ long history of ableism. However, I do question whether anti-Autism Speaks activism should be our number one priority as a community at this point. When we focus all of our energies on Autism Speaks, it becomes easy to forget … Continue Reading ››

Autism Speaks: How Long Does It Take to Look into It?

Team pages for the Autism Speaks Walks are pretty standard fare. You can go to each page to learn a little bit about a team who is pledging to raise money and donate to them yourself. A quick search of participants shows a wide variety of folks including companies, families, and organizations, which made the “Soldiers of Odin Canada - Ontario South Division“ not particularly unique outside of the comparatively large roster (most team pages are for about 2 people, Soldiers’ page has 10). That is of course, unless you know who the Soldiers of Odin are. At first glance, one might assume they’re just a biker group. Both the name and their team picture, featuring a number of guy all wearing leathers and jean vests, suggest as much. Being a biker group is fine. Bikers have been making the headlines for … Continue Reading ››

Autism Self-Diagnosis is not Special Snowflake Syndrome

Recently, 4chan-flavored trolls invaded the #autchat hashtag. For the uninitiated, Autchat is a bi-weekly discussion group for Autistic people. Past topics have included friendship, autistic representation in media and strategies for coping with executive dysfunction. The community is usually warm, welcoming and a great place to learn. Instead, participants were told to commit suicide or drink bleach to ‘cure’ autism. The source of their ire? An Autchat regular and middle-aged mother of two described herself as ‘informally diagnosed.’ Autism self-diagnosis is a topic that can evoke strong feelings in many people. It isn’t unusual for adults to self-diagnose. It also isn’t unusual to get a lot of push back or even violent threats for self-diagnosis. Why does self-diagnosis make people so angry? More importantly, why do people self-diagnose in the first place? The hostility directed at self-diagnosis is, fundamentally, based in ignorance of what factors lead to its existence: Healthcare … Continue Reading ››

What It’s Like to Be David

This is an image of a person holding a sign. Their face and legs are out of the frame. The sign reads, "Nothing About Us Without Us."
This is your intrepid author.
Last weekend, I protested an Autism Speaks rally at the National Mall. A handful of us, mostly Autistic, stood and watched as thousands of people went to raise money for the biggest autism organization in the United States. Upbeat music blared from an enormous stage. Cheerful college students and families with young children packed the sidewalks, despite the dismal weather. Some people wore homemade t-shirts and hoodies with their autistic relatives’ smiling faces emblazoned across the front. These people are, for the most part, good people. They care about their families. They care about their communities. They love the autistic people in their lives and want to do … Continue Reading ››