This is it. Dr. Shaun Murphy's first interaction with an autistic patient. I knew it was coming -- It's an obvious and necessary direction for Shaun's story to take. Even in the bizarre, distorted world of a prime time medical drama, Shaun can't reasonably be the only autistic person on Earth. There was exciting news: Liam, Shaun's autistic patient, would be played by an actually autistic actor: Coby Bird. Bird is 15, talented, and has previously appeared on the ABC comedy Speechless. I hope to see him in future episodes of The Good Doctor. It would be wonderful if Shaun could act as a mentor or role model of sorts, rather than Liam merely being a patient-of-the-week. That said, I was terrified that this episode would advocate for what Julia Bascom has called, "the IQ test for human rights." Some toxic corners of our community believe autistic people perceived as … Continue Reading ››
After days of protest and pressure from disability rights activists in Chicago and Washington DC, Congressman Bobby Rush has withdrawn his sponsorship and support from the misleadingly titled, "ADA Education and Reform Act," also known as HR 620. Disability advocates, activists, and organizations have all come out against the bill. Scott Nance, a co-organizers of the direct action that ADAPT held outside Congressman Rush's Chicago office, told NOS Magazine, "I am proud of the Congressman for being open to learning more about our concerns... Bobby Rush has preserved his identity as a leader in protecting the civil rights of every person." Rochester ADAPT activist Anita Cameron was pleased with the outcome and highlighted Congressman Rush's own past activism. "I thank Congressman Rush for listening to his constituents and colleagues and coming off of HR 620... I hope that he hearkened back to his Black Panther roots." Cameron also had … Continue Reading ››
This week’s episode, "Not Fake," preserves Shaun Murphy's complexity and humanity for another week. While this episode was excellent from a neurodiversity standpoint (everyone struggles in stressful situations, not just neurodivergent people), it completely failed when it comes to physical disability. Rather than live with an amputation and a prosthetic, a man's wife fights to have a risky, experimental surgery that would preserve his leg. To be fair, it is entirely realistic that doctors have a poor understanding of disabled quality of life. This episode didn't highlight that lack of understanding, though. Instead, it plays into one of the most negative tropes about living with a disability: That it is worse than death.
‘I don't like coffee.’The episode opens with Dr. Kalu sharing his own special blend of coffee. He roasts the beans himself. Dr. Murphy is as sassy as ever. "Smells like leather," he remarks. "And none for you, Murphy," … Continue Reading ››
On Tuesday, a fiery exchange took place between autistic advocates and autism parents the quarterly Interagency Autism Coordinating Committee meeting about inclusion, civil rights, and the usefulness (or lack thereof) of functioning labels. IACC is a government advisory panel responsible for setting federal research priorities. Only three of the 31 IACC members are autistic themselves. None of the federal members are autistic, nor is the committee chair. In a written comment, Jill Escher, a long-time foe of the validity of autistic advocacy and civil rights, submitted a blog post she wrote about neurodiversity on the official San Francisco Autism Society website. She complained that neurodiversity has ruined the validity of autism as a diagnosis because it includes "high functioning" people like the autistic representatives on IACC and "low functioning" people like her own children. This sparked a tense conversation among members of IACC that revealed … Continue Reading ››
On Friday morning, the Department of Education quietly rolled back 72 guidance documents from the Office of Special Education and Rehabilitative Services and the Rehabilitation Services Administration. The documents were described by officials to be “outdated, unnecessary or ineffective." However, no further details were provided as to what that might actually mean. Guidance documents are important because they explain how existing disability rights laws or regulations should be applied in schools. As a result, anxious disability advocates spent much of the weekend scrambling through hundreds of pages of complex policy documents, trying to determine how the rescinded guidance might affect disabled students across the United States. Special education attorney and autistic self advocate Michael Gilberg told NOS Magazine he was, "deeply troubled by the US Department of Education's decision to rescind 72 documents without any actual explanation of why... Parents, attorneys and advocates rely on this guidance to ensure that [disability accommodation … Continue Reading ››