Not too long ago, Kerry Magro released a list called “100 People with Autism You Should Know,” with the intent of introducing autistic people and their allies to a variety of autistic advocates. Unfortunately, Magro’s list doesn’t really reflect the autistic community. Magro’s list contributes to the idea that autistic people are predominantly white men who don’t view their disability as political. This alternative list is an effort to reflect the diversity of the autistic community. I wanted to highlight fierce advocates for civil rights and inclusion that reject the idea that we must comply in order to be acceptable. You can find these trailblazing autistic activists on personal blogs, Facebook pages, Twitter, Tumblr, YouTube and other social media.
Cranston, Rhode Island, has just established a voluntary registry to record information on autistic people between the ages of 6 and 21. The registry is managed by the Cranston Police Department and is intended to help autistic young people who interact with the police. Autism registries aren’t limited to Cranston. Several US states and Canadian provinces have databases that require or encourage professionals to enter information about autistic patients. Some registries, like Montana’s and New Jersey’s, are mandatory. Autism registries present a real threat to autistic people’s civil rights, privacy and autonomy. In 2015, I conducted research with the Human Services Research Institute and the University of Massachusetts Medical School. Our goal was to gauge attitudes towards the creation of a statewide autism database in Massachusetts The state government was considering creating a database similar to databases in other states. We recruited a “citizen’s jury.”A citizen’s jury is a type of … Continue Reading ››
Donald Trump and congressional Republicans are hellbent on scoring a healthcare win through their incessant efforts to repeal and replace the Affordable Care Act. These bills have done under different names, but they are collectively known as Trumpcare. Though this year’s bills have all failed, Republicans keep introducing new repeal bills. Like undead monsters that just won’t stay in of the grave, Trumpcare keeps coming back to haunt us. Senators Lindsey Graham (R-SC) and Bill Cassidy (R-LA) are responsible for the latest attempt to resurrect Trumpcare. They’ve introduced a new healthcare bill as part of their attempt to repeal the Affordable Care Act, known as the ‘Graham/Cassidy bill’. Other Republican senators, like Dean Heller of Nevada, have also expressed support for this bill. This incarnation of Trumpcare is even worse than the ‘skinny repeal’ rejected by Congress in July. The skinny repeal was bad enough, but Graham/Cassidy is probably the worst proposed version … Continue Reading ››
Congressional Republicans recently introduced the American Health Care Act, or “TrumpCare,” a potential replacement for the ACA. This bill has the backing of Trump, Ryan, and other Republican leaders. The AHCA includes a proposal to convert Medicaid into a series of block grants as a way to save the government money on health coverage. Block grants are a type of federal funding that allocates a set amount to state governments to run programs like Medicaid. According to the Republicans, block grants will give more freedom to the states and allow more flexibility to be innovative. In theory, devolving more control to the states will allow local governments to more adequately identify which citizens need specific kinds of care. Unfortunately, these promises from the GOP don’t match the reality of what Medicaid block grants mean, especially for the low-income and disabled people who are dependent on Medicaid coverage to stay alive. … Continue Reading ››
When most people think about accessibility in technology, their first thought may be about accessibility for blind or D/deaf people: captioning, visual descriptions or Braille conversion. Blind and D/deaf people aren’t the only ones who benefit from inclusive technology, though. Autistic people, people with learning disabilities, people with ADHD and other neurodivergent people also have access needs that site designers and developers can meet. Here are five ways you can make your websites and apps more accessible for neurodivergent people. Use subtitles/captions. Subtitles and captions for online videos aren’t just for D/deaf people or people with hearing loss. Many autistic people and other people with disabilities can have auditory processing difficulties that make it hard to understand spoken, recorded language. Using subtitles helps people follow what they’re listening to. Subtitles can also help people retain what they’ve heard long after they’ve finished watching the video. Avoid flashing images and clashing palettes. Quickly … Continue Reading ››