Tag Archives: autism research

Science & Research

New Wearable Detects Meltdowns Before They Happen

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A new wristband may give autistic people and our caregivers warning that a meltdown is coming up to three minutes before they happen. A version of the wristband is already FDA approved and on the market to help detect seizures. Dr. Rosalind Picard of MIT presented the results on Friday at the 2018 International Society for Autism Research annual meeting in Rotterdam, the Netherlands. ­­ During her keynote, Dr. Picard emphasized the importance of looking beyond neurotypical facial expressions and cues to determine how autistic people feel. Dr. Picard began her keynote by stressing the importance of autistic feedback in her work. She recalled an autistic friend's observation that “my biggest problem is not understanding the emotions of others. My biggest problem is you are not understanding my emotions.” Alexithymia, or difficulty understanding how one feels, is a common problem in the autistic community. This can often lead to situations in which someone does not notice … Continue Reading ››
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Lack of Racial Diversity Highlighted at Autism Meeting

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Last week, the quarterly Interagency Autism Coordinating Committee meeting took place. IACC is a government advisory panel responsible for setting federal research priorities. A thread running throughout the six hour meeting was representation and diversity, or lack thereof, both  in autism community leadership positions and within IACC itself. In many ways, the sessions were a string of events demonstrating not only the need for more autistic representation, but the need for racial diversity. There are currently only two autistic members of IACC. A third autistic member, Amy Goodman, stepped down in 2017. Similarly, IACC's membership is almost entirely white. Dr. Marcella Ronyak, IACC member and Deputy Director of the Division of Behavioral Health for the Indian Health Service, gave the first presentation of the day. She began by asking how many people in the room had a good understanding of what Indian Health Services is and what it is that they … Continue Reading ››
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Government Committee Recommends Increase in Autism Research Funding

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The Interagency Autism Coordinating Committee (IACC) recently recommended that autism research funding double, including an increase to adult services and supports. They also called for an increase in research funding for co-occurring conditions like epilepsy or Ehler-Danlos syndrome, which cause death and chronic pain for many autistic people. IACC is a government advisory panel made up of federal officials, autism professionals, family members and autistic adults. Currently, only three of the 31 IACC members are autistic. None of the federal members are autistic, nor is their chair. IACC is responsible for setting federal autism  research priorities. John Elder Robison, an autistic member of IACC, is pleased with the increase, as well as increased attention to issues beyond basic biology and genetics. “In accordance with out new President’s wish to make America great and get things done, we have recommended a level of funding that we feel will take us a … Continue Reading ››
Science & Research

New Study on Autism and Aggression Misses the Point

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There is a new study in the latest issue of the journal Research in Autism Spectrum Disorders on a correlation between autism, brain volume and aggression.   The team of researchers from Brigham Young University studied structural MRI data from the brains of 45 Autistic boys and 18 non-autistic boys to see if the brains did similar things or different things in the presence of “aggressive behavior.” Autistics who had been reported as exhibiting so-called “problematic aggression” had smaller brain stems and did not show the non-autistic tendency of structural differences in the brain structures linked to emotions and behavior. The brain stem is the part of your brain that keeps you breathing. The most basic functions of life are regulated by the brain stem, leading Stephenson, one of the study’s authors, to extrapolate that the discovered correlation means that, “this is evidence that there’s something core and basic, … Continue Reading ››